Alison Singer Announces Her Resignation as Executive Vice President of Autism Speaks

Disagreement on Vaccine Research Prompts Departure

NEW YORK, NY (January 15, 2009) – Alison Tepper Singer, executive vice president of communications and awareness for Autism Speaks, today announced that she has resigned from her position with the advocacy organization, effective next month.

“It has been an honor and a pleasure to help to build this organization into the preeminent autism advocacy group -- the group that has, in fact, elevated the word “autism” to the global vocabulary,” said Singer. “I am grateful to Autism Speaks founders Bob and Suzanne Wright for their leadership, insight, commitment and for the tremendous support and love they have shown to my family and me.”

“However, for some time I have had concerns about Autism Speaks’ policy on vaccine research. Dozens of credible scientific studies have exonerated vaccines as a cause of autism. I believe we must devote limited funding to more promising areas of autism research.”

Singer resigned prior to the January 14th Interagency Autism Coordinating Committee (IACC) meeting, at which the discussion of vaccine research was to be continued from the December meeting, at the request of one of the public members. Knowing she might cast a vote with which Autism Speaks might disagree, she resigned from Autism Speaks prior to the meeting. Singer serves as a public member of the IACC and will continue to serve until 2011. She was appointed to the IACC by outgoing HHS Secretary Michael Leavitt in 2007.

The IACC, created via the Combating Autism Act of 2006, is responsible for coordinating all efforts within the Department of Health and Human Services (HHS) concerning autism spectrum disorder, including drafting a Strategic Plan for autism research with budgetary requirements. At the January meeting, the IACC voted to seek input on two proposed studies of vaccines and autism from the National Vaccine Advisory Committee Safety Working Group (NVAC), an HHS group specifically charged with undertaking and coordinating scientific review of the federal vaccine safety system, prior to including the proposals as specific objectives in the strategic plan. Singer voted in favor of this motion.

Singer was the first professional hired by Autism Speaks when it launched in 2005. She served as interim CEO for three months, then as senior vice president and later as executive vice president. She also served as a staff member of the board of directors until her resignation. Singer has been responsible for directing the organization’s award-winning awareness and strategic communications programs, including its work with the Ad Council which was awarded a prestigious “Effie” award in 2008 in recognition of the 43 percent increase in overall autism awareness directly attributable to the campaign. She also serves on the Executive Committee of the Yale Child Study Center and on the board of directors of Autism Spectrum News, as well as on numerous state and local autism advocacy committees. She has appeared on Oprah, The Apprentice, NBC Nightly News, Good Morning America , CBS Early Show and numerous other news programs discussing autism issues.

“My work with Autism Speaks and within the advocacy community has been exceptionally rewarding, and I will continue to advocate on behalf of my daughter, my brother and the millions of others affected by autism spectrum disorder,” said Singer.


CARD Reveals Outcome of First Arizona Early, Intensive Behavioral Therapy Study

In 2006 the Arizona state Legislature and Governor Janet Napolitano approved $3.6 million funding for a two-year comprehensive outcome study to evaluate the effectiveness of early, intensive Applied Behavior Analysis (ABA) as a treatment for autism.

The Center for Autism and Related Disorders, Inc. (CARD) was selected to administer the treatment and spearhead the study in Phoenix. Now, one year later, the 16 children have shown promising results.

Amy Kenzer, PhD, BCBA, CARD’s manager of Research and Development says, “At this point, all of the children in the Arizona grant have received services for approximately a year and a half. Following one year of treatment, several children showed significant improvements as measured by standardized assessments and parent report, including two children who gained 50 IQ points. Many of the children also started full day Kindergarten this fall and are doing very well in their new classrooms.”

Kenzer will present the complete outcome report on February 14, 2009 at the Autism/Asperger Conference held at the Anaheim Convention Center in Anaheim, California. Her presentation begins at 1:30pm. Attendees will learn about the therapy utilized with all 16 children, the results of the therapy after one year, and the current status of the children.

About Amy Kenzer, PhD, BCBA:
Dr. Amy Kenzer, Research and Development Manager at the Center for Autism and Related Disorders, has over 10 years of experience in the field of Behavior Analysis and Autism.

Dr. Kenzer earned her Ph.D. from the University of Nevada, Reno and is a Board Certified Behavior Analyst. Her research interests include outcome-level analyses of ABA-based interventions, component analysis of ABA-based teaching techniques, fluency instruction, and basic learning processes in children with autism.

About the Center for Autism and Related Disorders, Inc. (CARD):
The Center for Autism and Related Disorders, Inc. (CARD) was established in 1990 and is among the world's largest and most experienced organizations effectively treating children with autism and related disorders. CARD operates 20 satellite offices throughout the United States and abroad. CARD has treated thousands of children around the world. Its services include assessments, supervision, parent/teacher training and one-to-one therapy.

Following the principles of Applied Behavior Analysis (ABA), a treatment for autism that has been thoroughly researched and empirically validated by the scientific community, CARD develops individualized treatment plans.